Program: Canadian Organization for Rare Disorders
Phone Numbers: 416-969-7464
Toll-Free: 1-877-302-7273
Fax: 416-969-7420
Email: info@raredisorders.ca
Website: www.raredisorders.ca
Address:
151 Bloor St W, Suite 600
Toronto, ON
M5S 1S4
Intersection: Avenue Rd and Bloor St W
Location: Toronto (Old Toronto)
Accessibility:
Wheelchair Accessible
Executives: Durhane Wong-Rieger - President and Chief Executive Officer
Service Description: National advocacy network for people and for organizations representing people with rare disorders * general information and resources

Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases


Application: Visit website for memberships
Eligibility - Population(s) Served: Patients with rare disorders and their families, patient organizations and corporate leaders
Languages: English
Area(s) Served: Canada
See Also: Diseases and Conditions Support Groups
Last Updated: 8/7/2024
Service Record URL: http://thehealthline.ca/displayService.aspx?id=163953

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