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Organization:
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Canadian Organization for Rare Disorders
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Address:
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151 Bloor St W, Suite 600
Toronto, ON
M5S 1S4
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Executives:
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Durhane Wong-Rieger - President and Chief Executive Officer
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Service Description:
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National advocacy network for people and for organizations representing people with rare disorders * general information and resources
Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases
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Application:
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Visit website for memberships
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Eligibility - Population(s) Served:
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Patients with rare disorders and their families, patient organizations and corporate leaders
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